Archive for the ‘Family Members’ Category


My son Larry was a brilliant student, but his first puff of cannabis was the start of a terrifying descent into depression and paranoia that cost his life.

As a child, Larry had been bright, gifted and extremely energetic. Looking back I would say that he always found it difficult to communicate his feelings, and even when obviously distressed would tell me he was “fine”. At the time I just thought this was a typical male reluctance to reveal his emotions.

As his mother, my instinct tells me he would eventually have worked these through by himself if only he had never touched drugs. From the moment he smoked his first joint of cannabis to try to make himself feel better, Larry had started on a road that would lead him to severe mental disturbance.

Although by nature a shy boy, Larry made several lasting friendships at the local school he attended. He did brilliantly academically. Graham and I knew Larry found his first year at university difficult, although he rarely confided in anyone. He told me he hated his first lodgings.

I phoned a student counsellor, who went to see Larry, but our son simply told him he was fine. Larry later said that he had some of the best, and the worst, times of his life at university. But it was during the beginning of his second year that I discovered, to my horror, how he was using cannabis to try to solve his confidence problems.

I was appalled when he told me. Larry had always seemed sensible and I had trusted him not to do anything stupid. How could he behave like this? I know that thousands of students go out every weekend and use drugs, but knowing how highly-strung Larry was, I was terrified of the effect cannabis might have on him.

I had read about use of the drug being linked to psychosis and felt desperately afraid for him. What would these drugs do to his health and his future? I only hoped these feelings of low self-worth would pass, but I don’t believe Larry ever really got over his lack of self-esteem, even though he was tall, good-looking, and very clever. He had everything to live for if only he’d known it.

His father and I were out of our minds with worry. If he had been defiant or arrogant about his drug-taking, we could have shouted and threatened him. But Larry wasn’t like that at all. All we saw was an unhappy, disturbed boy who needed our help as he had never done before.

We realised he was in danger both of becoming dependent and psychiatrically disturbed by the drugs.

Yet all the time Larry claimed that he was only doing it to “make himself feel better”. I tried my best to persuade him to see the counsellor — but he was deeply suspicious of any attempts to help him and hated talking about himself or his feelings to anyone.

In 2000, he finally admitted to us that his use of cannabis and ecstasy had triggered a deep depression — ironically the very thing he had been battling all along. I said I’d do all I could to help him. At my request, Larry went to see our family GP and was prescribed an antidepressant. For a few months I hoped Larry might be getting better, but then in early 2001 I made a horrifying discovery. Larry had been ordering prescription-only medications over the Internet and using them in combination with cannabis and ecstasy.

Later I found out from the local pharmacist that hundreds, if not thousands, of unsolicited e-mails offering on-line drugs are sent to Internet users all over the world every day.

He didn’t even attempt to deny what he had been doing, but broke down, telling me over and over how sorry he was, and repeating: “I’m evil, you don’t really know me, Mum.” When I asked about the prescription drugs, he told me Valium was used to soften the come-down after taking ecstasy. I was appalled and, as any parent would be, dreadfully frightened that my son’s life was out of control. I kept thinking: “If only he had never started smoking cannabis, none of this would be happening.”

It seemed so obvious that it had led him on to more serious drugs. From then on, I was constantly trying to prevent Larry’s access to drugs. Sometimes I would go through his room and get rid of them. On one occasion I threw away as many as 200 Valium tablets. After confiding in both my local pharmacist and our GP, I started handing any drugs I found to them. I couldn’t understand how it could be possible young, vulnerable people could obtain prescription-only drugs online. Surely it was illegal?

I was beside myself with worry and stress, and made sure I had the chance to intercept the mail before Larry got it.

Looking back, I wonder how I managed to stay sane.

Partly as a result of my increasing stress about Larry, as well as the fact that I was also caring for my elderly mother, my husband Graham and I separated in May 2001. We remained loving friends, but simply had no reserves of energy left to put into our own relationship.

Larry continued to live with his father while Ros came with me. I noticed that Larry did not show any emotion at this time, either over our separation, or my mother’s death shortly afterwards. During the following year, Larry continued to be very unstable. I knew he was still experimenting with drugs obtained over the Internet, and he admitted that he was still using cannabis “occasionally”.

Yet all the time he claimed not to be doing this for thrills, but simply to feel better about himself. I asked him what we could do to help. He decided he wanted to live on his own and rented a unit close to his father and me. But he continued to act in a very frightening way.

In June 2002, he came to my house in a highly disturbed and paranoid state. Terrified, I took him to the local hospital, where he was eventually seen by the duty psychiatrist. An out-patient appointment was made for a few weeks later.

But Larry’s behaviour was deteriorating too rapidly for this to be of use. He barricaded himself into his room so that communication became impossible. It was agonising to see my brilliant child’s mind unravelling before my eyes.

Two weeks later, I had a phone call from Graham to say Larry had been taken to hospital after running in front of a bus. I felt almost faint with relief when he said Larry had not been hurt.

I went straight to the hospital, where the doctor on duty administered an anti-psychotic drug. Larry suddenly showed a dramatic improvement, proving the doctor’s diagnosis of a drug-induced psychosis to be correct. Yet a urine test showed he had taken only six codeine tablets.

When I talked to a drugs helpline, I discovered that psychosis does not have to be the result of drugs present in the body, but may be the result of drug abuse from years earlier. This is particularly linked with the long-term use of cannabis.

Recent medical research has established a strong link between the use of cannabis and the development of psychosis and schizophrenia in vulnerable young people. Scientists say that by disrupting the delicate chemical balance of the brain, the drug causes changes leading to long-term mental illness.

I kept Larry with me as much as possible for six weeks after that.

He seemed to be improving steadily, and appeared brighter and more optimistic about the future. I even persuaded him to see a counsellor. But a diary he kept shows his mood swings: “Still getting delusional thoughts — worst fears — dying painfully, having to relive my life again and again, voices encouraging me to kill myself.”

In the autumn he got a permanent job. He had moved back to his father’s, but frequently came around to me for dinner.

HE saw his psychiatrist regularly and was prescribed various anti-psychotic drugs.

Larry had complained of hearing voices and had been diagnosed as suffering from schizophrenia from all the drugs he had taken.

By June last year, Larry was more active: swimming, cooking and playing the piano at home. I began to have hope. When I said he could live with me, he said he loved my house but felt there was something missing inside him.

He complained of an emotional numbness, described by psychiatrists as the “negative symptoms” of schizophrenia. He asked how he could go on for another 50 years feeling like this. On the day he died, he was due to come for lunch but he didn’t turn up and we were all worried. If he was not at his father’s house, where was he?

Even as I took that first call from Graham, I knew the answer. But it was not until about 20 agonising minutes later that Graham rang again: “Sue, come straight away. The police are here . . . Larry has thrown himself under a train.”

I didn’t ask whether our son was dead as I could not bear to be told over the telephone. Instead, after driving to the house in minutes, I ran up the path crying: “But he is all right, isn’t he?” Of course, in my heart I knew he wasn ‘t. Later the police told us that Larry had thrown himself under a train at 11 that morning.

Like any distraught mother, I blamed myself. Whatever I had done had not been enough. All I can do is hope to prevent other vulnerable people from being harmed by drugs in the way Larry was. I only wish with all my heart that I had been able to save my own son.

I live with my girlfriend and her mother has schizophrenia. It must be the worst case in the history of all mankind.

She screams profanities at the top of her lungs at least 15-20 hrs. out of each day. Saying that people in the movies are doing all these things to her. 99% of the time, none of it makes any sense. She even says I have done things to her and that im with all the people that are against her and hurting her. Which of coarse im not.

It is impossible to communicate with her in any way. I’ve tried to talk to her and understand for almost 6 months now, the more I tried to help the worse it got. She cusses me out she says she wants to kill me. I feel like a prisoner in my own home. She bangs on doors and stabs the walls and doors with knives. She throws and breaks things in the house. She calls the police and businesses just to cuss them out.

She also terrorizes the managment and the children in the building, and nothing satifies her. Most of the family won’t and can’t deal with her, but refuse to put her in a mental institution. She wont take any medication. At times it seems like an act, and at others it appears ginuine but shes been doing it so long it’s almost natural.

In her mind everything is related to something that has to do with her.

My grandma is has Schizophrenia but of course she refuses to think so. She’s had it all her life and latley its gotten so bad, Me and my parents live in the U.S and my grandparents lives in Romania, So we hardly come down there to see her but when we do it’s a living hell, evertime we visit her she talks about how people are trying to harm her that she has camera’s in her home and there’s been times where she’s accused us of trying to harm her. She terrorizes all her neighbors, sometimes in the middle of the night she will run up and down her 12 level apartment bulding yelling and knocking on peoples doors, saying people are out to get her. As you can imagine everyone hates her and its so embarrising to have to walk around town and getting all sorts of crazy looks from people because everyone in town knows about her and I mean EVERYONE.

People give me and my parents looks like, they hate us and why don’t we just put her in the looney bin but it’s not that easy. Because she’s so old and suffering from just being old is hard enough why would you put her in a mental institution? It’s hard cause she’s family and in Romania, no matter how crazy you are, no matter what you do family is family and you kill for your family. So if we were to do that it’s like letting her down and she would probably suffer even more because when your in the looney bin people treat you like shit. I mean they make it sound like they care about you in there but honestly they don’t. It’s hard cause we honestly have absoultly no idea what to do with her.

She makes phone calls to the police station every single day just cussing them out and just yelling like crazy. She yells so much I honestly don’t think ive ever seen her just talk to us in a nice calm voice.It’s gotten so bad that you can’t even hold converstations with her because every other word that comes out of her mouth has to do with how people are after her, that she hears voices at night and see’s people. Sometimes I feel like im the one who has this horrible illness when im around her because when thats all you hear about for years in a sense you feel like your them and that your the one in their shoes and your crazy. She has so many locks on her door it’s scary, it sends chills down your spine just watching her open the door to her own appartment. She has so 5 diffrent locks she evern has chains on her door. and like 3 diffrent keys to open the door. I mean thats basically what she spends all her money on.

My parents will give her money to spend on food clothes etc. but all she spends it on his changing the locks on her door every now and then because she thinks people will try to go in her home and harm her at night. Thats basically her obsession that everyone is out to get her in some way or another. It’s hard when you see all this happening in front of your face and all you can really do is sit there and watch. I mean their is not much you can do you know. We have triend numerous times telling her she has a problem and needs to take her medication but as most people who suffer from this, she thinks she’s just fine and healthy and that we are the crazy ones for not believing her. Thats what goes on in her mind, she thinks everyone but her is crazy.

It’s hurts me and my family so bad to watch this espeacially my dad because it’s his mom and it hurts him so bad watching her and seeing what she’s become. He’s known her when she was healthy and didnt have this problem and when he see’s her now you can tell he just want’s to break down in tears.I think its effected him the most out of everyone.She’s so out casted from society, she has no friends what so ever, she has my grandpa but living with her for so long even he is starting to show schizophrenia symptoms also and who can blam him. I mean I feel so bad for him,because we hardly see her,but poor him he has to live with that yelling an cautious ever single day and night 365 days a year till the day he dies, I mean it literaly drives you insane to.

Living with a schizophrenic is one of the hardest things you can possibly imagine just cause it’s so hard to stand your ground. And you don’t know what to do your so confussed and frustraed and just plain old hate life. It’s so hard cause you want to help them so much but its frustating trying to explain to someone that they have a problem when they don’t think they do. The people in her apartment complex have called the mental instution on her and she’s been put on medication many times but you can’t force someone to take their medication when you live in the U.S and they live all the way in Romania. If we even bring up the question " Did you take your medicine" she starts going off why does that even matter. I mean you know she doesnt Sometimes I wish I could just yell at her and tell her STOP IT JUST STOP!!!

I mean it’s so hard to watch because she’s old and sick she has so many problems already I mean just being and older women is hard enought but on top on that she has schizophrenia. She’s the only person that has me brake down in tears at night nobody can really make me cry except for her.When you hear about schizophrenia people just think it’s just hearing voices but it’s so much more than just that. There’s so much more to it that not even little articles on the internet can tell you. The only way to find out is to either have had this illness or you know someone that has it. If I had to describe Schizophrenia in one word that word would be "PAIN" because thats what it’s cause my grandma and my whole family in general. We still love her to death I mean she would be such an amazing women if she didnt have to go through this. She cares about her family so much and thats what makes decisions like putting her in a mental institution even harder no matter what anyone says, it’s one of the hardest things anyone could do to a family memeber. I guess all me and my family can do is sit back and watch till she ends up passing away.

Name: Linda
A Friend/Family Member\’s Story
email: http://joseph-j-dionisio-jr.memory-of.com/

Please visit my son’s website. His sister Linnie created it for him. My son committed suicide at age 23 on May 9th 2005. He had been diagnosed over the years as bipolar, schizophrenic, etc. they could never make a medical determination of what his mental illness truly was. None of his meds worked, none of his psychiatrists helped…nothing helped him and it was very frustrating, sad and terrible. His mental illness started to destroy him at age 15 and it was relentless. My son, Joseph was a brillant, kind, beautiful person who was in torture all of the time. He tried to fight it, he did the best, the very best he could, but in the end he had to leave. I love my son and miss him greatly.

Email: Lynda579@aol.com

Please visit my sons website. His sister created it in his memory and honor. My son was diagnosed with biopolar, schizophrenia, etc. The mental health community could never give us a clear diagnosis. My son started getting ill at age 15 and through the years, no matter what we did to help him….psychiatrists, battery of very expensive tests, hospitals, threapy, medication…nothing worked or helped. My son took his life at age 23 on May 9, 2005. He fought for 8 years against his foe, mental illness. He was a bright, brillant, beautiful, funny person. I miss him so very much.

Thank you very much. I had hoped to help is some way in my son’s name. I am in profound sadness every day of my life. My daughter, Joseph’s sister Linda has been through so much sorrow and pain over the death of her only brother. We loved him so much and tried so very hard to help him. I would like people to visit his site to see what a beautiful person he was, how much he is loved and how much he is missed. It is my hope that if someone is contemplating suicide he/she will read about my son and how he suffered and how we are now suffering missing him and not do it.

http://joseph-j-dionisio-jr.memory-of.com/

Thank you,

Linda, mom of Joseph

by Donald Evans

My name is Donald Evans. I’m 39 years old, and I’ve had schizophrenia since I was 25. I live in the Atlanta area and grew up there. I also have an identical twin brother with schizophrenia. He got sick at age 21. I have another brother (younger) with severe epilepsy and a mother with bipolar disorder. My dad and one sister, who is the oldest sibling, seem to be the only “normal” people in the family.

I was thinking to myself the other day that I’ve suffered through fourteen years of pure hell; that I feel like I’ve lost a large part of my life to schizophrenia. I feel like these years have been taken away from me by this illness. Sometimes it feels like I’m trapped by this spirit so strong inside of me that I don’t know what it is at times. I was raised fundamentalist in the South, where people sometimes associate unusual behavior with demons and the devil. I don’t want to think my problem is demonic, and yet I don’t want to think it’s mental — but it is.

One thing I have to accept is that I have a mental illness; that doesn’t mean I’m different from anybody else. But I think sometimes that if I hadn’t become ill, I’d be working full time somewhere.

My illness started in 1985 when I was working in Houston, Texas, driving a truck for some soft drink companies and serving machines. I began to feel very paranoid about the Teamsters Union, and thought that they were threatening me and going to hurt me. I might have misinterpreted things, but the paranoia and fear felt very real. Shortly afterward I started to hear things like “I hate your g_damn guts,” “You’re going to die,” etc. I also had religious delusions, like thinking I was Jesus.

I was hospitalized in Atlanta a couple months after the symptoms started. This was to be the first of about 30 to 40 hospitalizations I’ve had in the last fourteen years. I’ve also been put in jail for symptoms of my illness. Fortunately, in the last few years I’ve been on Clozaril (the highest dose possible), which hasn’t controlled all of my symptoms, but worked better than other antipsychotics. I take about four other medications too.

I was put on outpatient commitment because of an incident that happened about a year after getting schizophrenia. I experienced an auditory command hallucination that told me to get a gun and kill myself. However, I shot myself in the chest and didn’t die. It was at this point that I was sent before the county probate judge and was ordered into treatment (outpatient civil commitment). The judge required me to attend day treatment on a daily basis and take medication regularly. The judge offered to help me obtain a lawyer/advocate that would help me follow through with the outpatient commitment plan and help me report progress back to the judge.

The day I first went to see the judge, I was nearly a vegetable from the illness. I hadn’t been participating regularly in treatment, including taking medication. I could barely function. At the first review in front of the judge a year later, when the lawyer saw me, she told me that I looked a lot better. I continued to get better over the next few years. After about five years, I think, I was participating in treatment so regularly that the outpatient commitment order was discontinued.

Almost all the time I got sick I ended up in the state hospital, but there was one time I remember where I ended up in jail. A voice commanded me to go to a part of Atlanta to look for Dorothy Stratten, and I was arrested for criminal trespassing at a hotel. Instead of taking me to the hospital, they took me to the county jail, where I was beat up twice by other inmates and taken advantage of.

The outpatient commitment order helped me a lot. It prevented me from getting into trouble and got me on a regular schedule. I knew I had to take medication and become involved in some type of daily activity to deal with the voices and paranoia. Since I’ve been on Clozaril and the other medications, I’ve been able to work part-time and attend day treatment. I’ve worked at a restaurant now for about six months, which is about the longest time I’ve held a job. The voices don’t tell me what to do anymore. I ignore them and tell them to go to hell and leave me alone, especially if they’re bad voices.

As far as advice to someone facing an outpatient commitment, I think the best thing for him or her to do is to use it to become educated. They need to realize that they have a chemical imbalance; that they DO have a brain disease. It’s not just their fault — they were genetically born with it, or that it came on through age, or whatever.

If people don’t take their medication, they’re going to get into trouble. As a person who’s had bizarre thoughts and feelings, I know what people are going through — I’ve been through the same thing. Some people who deny that they’re ill become either homicidal, suicidal, or both. I haven’t been homicidal but I’ve been suicidal, and I got help.

I learned that when those feelings started, it was part of my depressive part of my illness, and I needed to seek help before I got worse and reacted again. I learned this largely through outpatient commitment, and the education I got through treatment. Sometimes outpatient commitment is needed — I would say in limited circumstances — it would be based on what the person did or what they do.

I hope that people realize that individuals with severe mental illnesses need help before they get into trouble and commit a violent act like homicide or suicide. To wait until a violent act occurs often can be too late, and isn’t a compassionate approach for people who have severe mental illnesses like mine.

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